DPP Day Twenty Three ~ Thirteen Today

 Yesterday was a really challenging day and Pip was anxious that some of the birthday plans would have to change but that was not the case!  A real answer to prayer ❤️.  She had a short period in the afternoon when she was struggling to remain upright but that was just at the end of The Harry Potter Escape Room Game and then it was time to watch the film, "A Boy Called Christmas". Would definitely recommend watching it if you get the chance 😊

We also had some other rather unusual answers to prayer.  Our GP follow up this morning highlighted some abnormal blood test results which necessitate a referral to a paediatric endocrinologist.  We seem to be collecting consultants and assorted conditions at the moment and as much as I would rather this wasn't the case, it does at least explain why other certain health issues have been happening.  In addition Pip's cardiologist rang to enquire how things were progressing with the drug change and I was able to explain that things have not been great at all.  As a result we agreed to trial one dose of the ivabradine first thing followed by propanalol for the remainder of the day.  He is also going to speak to her paediatrician and request IV Saline once a week as this makes a significant difference to many PoTs patients.  With all of these medical issues I really felt as if God was saying, 'I've got your back, I know it's hard but things will come good.'

Here are the photos from today:

Super happy to be thirteen ❤️

Not quite x marks the spot as Pip was born in the dining room in the old house!  However we were in the dining room and next to the table where she was born 😊. Normally we try to have a photo at her time of birth 8:39am but we are all exhausted so the photos was taken an hour late.

Pip love, loves football and her favourite team is Liverpool.  She was made up with scarf that we had bought her and her play therapist/counsellor gifted her a Liverpool shirt which she is going to frame and put on her bedroom wall.

As usual Pip's best friend Beth came to spend the day with us and both girls had a really lovely time:

Enjoying a lunch of sausage baps and vegetable sticks.

Working through the clues.

Me helping out as by this time Pip was definitely feeling off.

A rather unwell Pip glad to be sitting down with her legs elevated.  The girls are holding their prize, another dog themed Christmas decoration - although Beth has told me that she keep hers up all through the year ❤️

Making origami stars.

As per tradition they both get to blow out the candles ❤️

Low carb chocolate, caramel brownie birthday cake.  It's the first time I've made it and it was a real hit.

 A final end of day treat hanging out with her school friend Anna from InterHigh.  They are both Minecraft gaming fans and Anna had designed a birthday world for Pip complete with balloons, games, food and a spa!  They video/audio chat on discord as their virtual characters work on building a project.

I'm so glad that we got to make some special memories today it has really warmed my heart and I now feel that I can breathe easy for the time being.