Friday, 29 June 2018

Finally Recovering :-)

Since my last post which seems aeons ago, I was struck down with a nasty bacterial infection.  The cause was a Klebsiella bacteria that normally resides in the gut, but decided in my case to go walk about :-(  It took three courses of antibiotics to get it under control and then ten days later I was back at the emergency GP with similar symptoms.  In fairness to her she thought that the original bacteria had not completely cleared, since it is known as a super bug and is antibiotic resistant, so I left with another course of heavy duty antibiotics.  Little did we know that in fact my symptoms were due to a rampant systemic candida/yeast infection and it was only when I spoke with another GP that we were able to pinpoint the cause.  At that point I had already begun an anti candida diet and had just started a different set of herbal anti bacterial tinctures.  Within 24 hours the tinctures were doing their job and I had a horrendous herxheimer (candida die off) reaction: nausea, weakness, hypoglycaemia and a heart rate that was utterly bonkers!  Still the side effects proved that I was on the right track and that knowledge alone kept me going. My body has been clearing the candida infection but there were still a few issues earlier this week, so I decided to take a pharmalogical oral anti-fungal and the last remaining issues are slowly resolving, yay!

The kids have done an amazing job helping around the home but even they began to crumble when I wasn't improving, so Pip stopped with some home school friends for a while and Ben had a weekend with Sara, Tom and Oliver.  Sadly he missed five weeks of college as I was unable to get him there and Dave is no longer able to drive.  The college were really understanding and because he was up to speed with all his work, he only had a few loose ends to tie up.  Thankfully I was able to get him into college last Thursday.

We have had other local friends that have either taken the kids for a day or have ferried me to the GP surgery, several have seen me really sick and at a very low point.  One weekend the pain was so bad that I only slept four hours out of the 48.  Looking back the most frightening moments were when I was in a really dark place but literally by the grace of God, He pulled me through.  I couldn't think straight to pray but I found some amazing praise and worship music on YouTube and just listening to the words and humming along kept me sane.

I am so grateful that I am on the right side of recovery and being so sick certainly focuses your mind on being extremely appreciative of even the smallest things!  With that in mind I will leave you with some happy pictures from the past few weeks:
 My Birthday

 I had a reprieve on my birthday and was actually well enough to enjoy the day.  Ben made a lovely birthday breakfast and we also spent the day with Mary whilst Kath was at work.





 
Uncle Ben making himself useful :-)

Ben's Birthday







 Fr L not only came to visit Ben but he also brought the sacrament of the sick for me, for which I was truly grateful.


 Ben's T-Shirt reads:  I never got my acceptance letter from Hogwarts, so I'm leaving the shire to become a Jedi!




Poppy Cat
 
 Who needs a conventional cat bowl when you can drink from a bucket instead :-)

Thanks for reading and I hope to pop by soon xx 
 

Sunday, 6 May 2018

An End of Week Round Up

We met with our homeschool friends on Tuesday and the girls worked on a replica of an Egyptian necklace.

On Wednesday, Dave and I went to visit Sara, Tom and Oliver.  Sara and I had fun choosing books for Ollie, and at the tender age of seven weeks he has his very own library ticket ;-)

On Thursday, in between a hair appointment for me, we completed all our home school tasks and I visited Uncle Bry as usual in the evening.

Saturday meant Wildlife Watchers for Pip and an extra chance for me to be in the loft room.  So far this week I have managed to make four bags and four lavender baboushka dolls.  When it is too hot for the loft room, I take my handsewing or crochet outside and enjoy working in the fresh air.  In the afternoon we had a visit from Kath and Mary which was lovely.  Pip had fun hanging out with her niece which meant nattering time for me and Kath ;-)

Today the kids and I sat outside to pray the rosary whilst Dave rested inside.  Warm weather is great if you do not have MS, so he has spent the day seeking either shade or being indoors.  He will just about to acclimatise to the heat and then the temperatures will drop!  I don't think this current warm spell will last.

All in all it has been another good week, with plenty of variety and lots of things accomplished.

 Oliver and Grandpa ~ Ollie looking a bit phased, he had just had a big feed and was definitely tired!


 Filling out nicely ;-)


 Library books for our youngest bookworm!

Monday, 30 April 2018

A Productive Day

Funny how blue skies and sunshine can spur you on :-)  We managed all the items on our to-do list which I think is the first time ever!  In no particular order:

We managed a weekly home blessing hour a la Fly Lady, surfaces dusted with a swiffer brush, floors cleaned, mirrors wiped and the bathroom given a once over.

Pip mowed the lawns and Benedict undertook all the meal prep for the day, vegetable and chicken soup for lunch and lasagne for tea.

Ben helped with the recycling.

Pip completed all her home school lessons:  Singapore maths, spellings, times tables practice, read aloud and adding another floor to her Egyptian house.

Three loads of laundry were washed, aired and put away.

I made banana muffins and a start on another project bag for the craft stall.

Ben has been working on an Age of Empires scenario with an Egyptian theme.  He has undertaken all sorts of research for this project and has worked really hard.

Tomorrow we are home schooling with friends and I'm looking forward to a quieter day!










 

Sunday, 29 April 2018

Sunday Snippets

We finished the death mask on Friday and for a post lunch treat Pip made the date balls for afternoon tea:




 Dave is has found a way of attaching the mask to a wall and so the first artefact for the "Around the House Museum" will duly be installed :-)

On Saturday I spent the whole of the day in the loft working on items for the craft stall.  I also managed to make a handmade gift for an upcoming birthday and it was quite satisfying to see the completed project.  I have come to accept that making handmade items for sale will in my opinion never sustain a living wage.  However this form of work not only enables me to work to my own timetable, thus allowing for my own health needs it also means I can be at home to support my family.  Somethings in life such as flexibilty really are priceless.

On Friday the diabetes specialist nurse arrived at our home minus the all important laptop!  This meant that she was unable to make a fully qualified decision regarding Benedict's diabetes care and I was quietly apoplectic!  As a result some cursory changes were made and she is returning on Wednesday to undertake a full download of the sensor and pump information.  His diabetic readings are quite worrying, yesterday he had multiple hypos throughout the day and he was having a quiet day at home!  If he had been active there would have been a reason, but when these blips occur for no apparent reason it is quite baffling :-(

We missed church again this weekend, my health is just not  up to it at the moment.  By the time I have ferried Ben to college, taught Pip, attempted to keep on top of the house and undertake additional work hours, I'm worn out by the time Sunday rolls around.  We did have a lovely visit from long standing friends in the afternoon.  All the kids played together really well and Debbie and I had a quiet time knitting and chatting.  And before we know it, Monday rolls around once more!  All we need is some decent weather ;-)

Thursday, 26 April 2018

Hands On History: Ancient Egypt

We decided to join in with a friend on a history unit study, so when we met on Tuesday the girls worked on a death mask of Tutankhamun:





 We also managed to paint the outer part of the headress which has now been glued in place, complete with crazy beard!  Pictures to follow tomorrow :-)

We found some really great short videos aimed at KS2 pupils including one about the types of food eaten by the ancient egyptians.  I remembered a really useful youtube and website called Pepper And Pine  And thanks to this site we made a really yummy meal for our tea:

Spicy Chicken,
 Lentil, onion, garlic and sultana stuffed cabbage leaves
 Baked potato ( not authentic I know) for some carb.

We had hoped to make the date balls for dessert but we were late returning home from college and food shopping.  However we are home based tomorrow so they are on the home school to do list :-)
 

Monday, 23 April 2018

Whacky

On Saturday we had glorious sunshine, so once we had dropped off Ben at Mill Hoppers, we headed across the road to the garden centre cafe:












However on Sunday when I went to meet Ros, my long standing friend and faithful blog reader the weather was doing this:



It was cold and grey and the cafe was crowded so we sat outside and after an hour of chatting, found a space in the smaller of the two tea rooms.  Cue another decaf soya latte to warm up :-)

The weather has not been the only thing that has been whacky ๐Ÿ˜œ. Benedict's blood sugars have been all over the place and last night was my third in the row of being woken by the sensor.  He was running low yet again :-(. 

As a result of the broken nights and several weeks of Sara worry, extra driving, appointments and other stresses I am trying to stave off a crash in my health.  It is 6:30pm and I am already tucked up in bed and typing this from my phone.  

We have the diabetes specialist nurse visiting on Friday whereby I hope we can make the necessary adjustments to stabilise his condition.  If not I will be needed matchsticks to keep my eyes open ๐Ÿ˜

Thursday, 19 April 2018

Thankful Thursday

Thankful for blue skies and sunshine today

Thankful that Ben is wearing a CGM (continuous glucose monitor).  For the past month his diabetic readings have been all over the place, culminating in several consecutive days of multiple hypos.  Ben's new pump has a function whereby it will automatically shut down, if the sensor detects that he is running seriously low.  Needless to say he has been "alarming" all day!!  The worst bit was when I went to check on him before retiring last night, only to be greeted with a piercing alarm and the following on screen data, " I have diabetes, this is a medical emergency, call for assistance!"  At least I now know that should he ever be unconscious whilst simultaneously wearing the pump and the sensor, that all in theory should be well ;-) 

Thankful for the clothing bargains found in the shops today.  I cannot see the sense in window shopping and I only buy what I need, but the recent surge in temperatures was just the nudge I needed and some long overdue new tops were bought this morning.

Thankful that Uncle Bry called round and stopped for tea.  He is very generous and whenever I see him, he has usually bought some treats for us to share.  We had raspberries in our post lunch smoothie and strawberries with yogurt for our after dinner dessert.

Thankful that both kids are competent in the kitchen.  Benedict made a yummy vegetable and lentil lasagne for our lunch on Monday and moussaka for our tea.

Thankful for Poppy she never fails to make me smile. 

Thankful for some recently purchased active wrist splints.  I have had to use wrist splints in the past, but they had a steel rod insert and therefore doing anything with your hands was virtually impossible.  Knitting and crochet are my sanity savers, but over the past few weeks the pain in my hands and wrists has become quite wearying.  In addition to the fibromyalgia I also have joint hypermobility syndrome.  JHS is where the joints are super flexible and can work beyond the normal range of movement.  Some folk can have this condition and no symptoms.  Some of us have chronic pain and flare ups and in the worst cases the joint itself has dislocated.  Essentially the tendons and fibres surrounding the joint are working beyond their capacity in attempt to maintain joint stability, and as a result pain ensues. 
These new splints have enabled me to keep up with the crafting as well as moderating joint movement, a win-win situation ;-)

Thankful that Sara is making good post partum progress and that Oliver is such a chilled out baby.  She is well rested thanks to his sleeping for a good stretch at night, long may it continue!

Some pictures to share:


 Ben's yummy vegetable and lentil lasagne.


 Kathryn on Easter Sunday having fun with snap chat selfies with Ben!





 Oliver was one month old on Sunday and I got to have Grandma cuddles yesterday.  Love his hair :-)

What are you thankful for today?