It was a Mum and Son weekend.
Pip stayed with Sara, Tom and Oliver and Ben and I hung out together. It was meant to be a quiet weekend but in the end we had two lots of garden visitors at various times on the Saturday afternoon, with rest breaks in between. Living with a chronic illness and one that is in a significant flare is always tricky when it comes to socialising. I find sustained conversation when I am this unwell very exhausting and in turn it exacerbates all the horrid physical symptoms. However I am mindful that Ben and Pip need bright spots in their day and so I said yes to the visitors knowing there would be a pay back at some point.
This morning I dropped off some items for Dave en route to having lunch with ST and Ollie and I made the mahoosive mistake of not taking the lift and using the stairs 😓 By the time I reached his ward I couldn't walk in a straight line and the muscle tremors had kicked in, oh dear. There was no sign indicating that visitors were not allowed and a nurse even let me through the doors but I was met by a staff nurse who wouldn't even let me wave at Dave from the corridor. I know they are doing their job but I must admit I was sad.
Sara made a really lovely lunch but the visit was marred by my feeling very poorly. In fact I even forgot to take pictures of the visit which was a shame as I know Dave would have loved to see how they were all doing, ah well that's life.
Once home I staggered upstairs and crashed on the bed and that was me for the remainder of the afternoon (I've spared you the photo of me looking ghastly!) Pip occupied herself downstairs and Ben took charge of the tea, thank God. I had a very tired WhatsApp chat with Dave after tea and he has finally recognised that he needs a transfer to the neurological rehab centre in Preston. He is currently on a geriatric rehab ward and a significant number of the patients have dementia. Consequently he was disturbed during the night with staff dealing with folk going walkabout and looked quite dispirited this evening.
We are spending part of this forthcoming week in Cumbria visiting family, the kids and I need a break and my Dad is hoping I'll trim his hair, poor guy must be really desperate! So tomorrow and Tuesday are home days packing and tidying and with a bit of luck Dave should be transferred to rehab before we leave on Wednesday.
