Friday, 6 January 2023

Post Covid PoTS

 When I saw the GP on Tuesday she suspected that Postural Orthostatic Tachycardia Syndrome (PoTS) as a result of covid is the cause of my heart issues.  As an extra security she is running a 24 hour ECG to rule out atrial fibrillation.  I think her first assumption is the correct one.  When I saw her my pulse was within normal range and my BP 112/80 which was spot on 🙂. 

I’ve been doing some reading around post covid issues when mental ability allows - usually a ten minute read and then 30 minute rest.  There is a cardiologist who specialises in PoTS and runs this website: www.stopfainting.com and he has shared how to conduct an active stand test which can then be shared with your GP.  In hindsight I should have realised it was going to be an ‘off’ day when I had a bad head throughout the night and slept badly.  I was desperate for a bath and hair wash and despite taking my time needed to lie down between drying and dressing and the same for drying my hair.  When I was attempting to dry myself my legs and feet turned purple and I recognised it as ‘blood pooling’ something Pip suffered with before she was able to access medications.  After a really good rest I asked Dave to help with the active stand by taking the readings at prescribed times and the results were very interesting!  Most folk think that PoTS causes a drop in blood pressure but in fact the opposite is also the case, as shown in my readings below:



I’m hoping to repeat the test in a few days once my heart rate has calmed down to compare results but I think at least we now know roughly what is going on.  Thanks for all your good wishes they are much appreciated 🙂

Tuesday, 3 January 2023

My Furry Friend

 Poppy has been my constant companion these past weeks she either knows I’m not well or taking advantage of an extra person to sit on 😂. I saw the GP this morning and she’s requesting input/advice from cardiology and has requested a 24hr mobile ECG.  I had really bad tachycardia Sunday evening just before bed when my heart was racing at 130bpm for 45 minutes.  Even when I attempted going to sleep it was over 115bpm and then blow me it woke me up two hours later!  Needless to say I had very little sleep that night ðŸĪŠ. Yesterday wasn’t great but so far heart has remained stable today.  

In addition to heart issues I’m still dealing with swollen glands, sore throat, difficulty swallowing and my voice is affected on top of weakness in limbs and post exertional crash if I do anything, the GP visit meant I was horizontal this afternoon 😂. My big achievement today was making sandwiches for tea and I’m calling that a win!